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2022 Social Media

We are pleased to be able to offer families in our Batten community the chance to virtually attend the BDSRA family conference again this year.

The last 2 years have been brilliant events and the BDSRA work so hard to create an amazing informative event. This year, with COVID restrictions lifted, the conference is being held in person in Ohio and remotely.

To sign up for the event, please CLICK HERE

The BDFA will be providing family conference boxes for our UK Batten families who attend virtually.

If you have any problems with signing up, please contact Lisa at the BDFA on

We hope you will join us there.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.