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2022 Social Media

We are pleased to be able to offer families in our Batten community the chance to virtually attend the BDSRA family conference again this year.

The last 2 years have been brilliant events and the BDSRA work so hard to create an amazing informative event. This year, with COVID restrictions lifted, the conference is being held in person in Ohio and remotely.

To sign up for the event, please CLICK HERE

The BDFA will be providing family conference boxes for our UK Batten families who attend virtually.

If you have any problems with signing up, please contact Lisa at the BDFA on admin@bdfa-uk.org.uk

We hope you will join us there.

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

DONATE

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease