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Threats to science funding is a threat to us all, please visit and send an e-postcard to the Chancellor about why science and research is vital for Batten disease.

The government is once again threatening research with cuts of 25% to 40%. Join us at 7 PM on 26 October, at Conway Hall in London or online for a high-impact event calling on the Government to reverse the decline in science funding, and write a postcard to George Osborne explaining why science is vital to you.

Click here to find out more

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease