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Photo Of Heather Band

We are very sorry to announce that our Scientific Officer, Heather Band, left the BDFA on 7th June 2019 after almost seven years with the organisation.

We thank Heather for her professionalism, dedication and all her hard work on many research projects for the BDFA and her work on the BATCure project.

The decision is purely financial, as we have revised our strategy in line with a stripped-down budget and as part of this, Heather has accepted redundancy. We wish Heather all the best for her future.

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With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

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folder for a newly diagnosed family

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helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease