BDFA Family Folder
FREE FOR FAMILIES
Families tell us frequently that the professionals working with their children and young people often do not have access to quality information and resources about all aspects of Batten disease. We hear that health, social care and education professionals turn to the internet for information which can be poor, inaccurate and out of date. To try to solve this issue, the BDFA, with thanks to the kind sponsorship of the Truemark Trust and the Pickering Family, have been able to produce a family folder containing information about all aspects of care for children and young people, and the support and services that are available across the UK.