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Max and Abby

Book for Siblings

Told through the eyes of big sister Abby, Max and Abby shines a gentle light on the challenging topic of childhood dementia and disability, revealing the highs and lows of life as a sibling of a child with additional needs.

Designed to educate, support and illuminate, this contemporary resource also inspires empathy and inclusion among siblings and peers of children with Batten disease and other childhood dementias.

Recommended for readers 5-12 years

About the author

Dr Ineka Whiteman is a neuroscientist, consultant, patient advocate and public speaker. An award-winning researcher, Ineka has more than 20 years’ international training and experience in the human brain and dementia.
In 2018, a close friend’s daughter was diagnosed with Batten disease and Ineka felt compelled to learn about this devastating, little-known childhood dementia. She discovered a deep passion for helping affected children and their families.
Now regarded internationally as an authority in Batten disease and childhood dementia, Ineka leads research and medical affairs for several non-profit patient organisations, including the Batten Disease Support & Research Association (BDSRA) Australia.

Book is free, but we ask for £4 to cover the cost of postage

A book published by Batten Disease Support & Research Association Australia 2022

Max and Abby has a Recommended Retail Price of AUD$14.99 (+P&H), however thanks to the generous support of partners Dementia Support Australia and the James N. Kirby Foundation, BDSRA Australia has been able to send the BDFA some of the books to be shared here in the UK to all families in (current and bereaved) who have been directly affected by Batten disease.

The books will be provided free of charge while stocks last (p&p £4), however in lieu of purchasing, you may wish to consider making a small donation to the work of the BDFA, you can donate here.

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