Shop Poppy – When You Were With Me (2023) CD Single

Beyond Records & The BDFA

Poppy, who is 15, wrote the song about her precious memories of her two cousins, Ellie Mae and Caleb, who both passed away from CLN2 Batten disease aged 6 and 9.

The single has been produced by our amazing friend and supporter David McGovern, along with his good friend Paul Fairbairn, who wrote the music and arranged the song.

We are so grateful to David for his tremendous support of the BDFA and the Batten community & we really hope that everyone will get behind the single and help to spread the word!