General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  

BDFA Board

Bob Thompson- Trustee

Bob Thompson- Trustee

  Bob Thompson is parent to Frank (12) who has CLN2, Kirk (20), Mae (17) and Blue the dog. Bob…

Simon Sewart- Trustee

Simon Sewart- Trustee

  I am a father of two boys Max (9) and Felix (6). Max was diagnosed with atypical CLN2 in…

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease