Dr Joanna Nightingale- Scientific Officer.
Jo joined the BDFA in June 2022 with a wealth of experience in scientific research and has worked in the…
Jo joined the BDFA in June 2022 with a wealth of experience in scientific research and has worked in the…
Mimi is a bereaved parent and her son Bertie passed away in 2019 from CLN1 Batten disease. Mimi is already…
Sarah is a Registered Nurse for people with Learning disabilities and has worked in the health and social care sector…
Gurdev is the Community Fundraising Officer at BDFA, taking the lead on all aspects of community fundraising. The role involves…
Liz joined the BDFA in January 2022 and is a qualified Child & Family practitioner working with families for…
Sian has over 20-years-experience working with children, young people and adults with profound disabilities and rare diseases across education and…
As Head of Fundraising for the BDFA, Liz is responsible for growth of income to achieve long-term sustainability. Liz,…
I just wanted to take the time to quickly introduce myself to you all. As you are aware, Laura…
Hi! I am Boris The Bear, I am the official mascot for the BDFA. I live in the BDFA office…
Amanda has been working in the voluntary sector for 15 years, setting up community groups and then going on to…
I joined the BDFA in October 2017 helping in the office 2 hours a week, I now work 5…
I started the role of Clinical Nurse Specialist for Batten disease in October 2016. I am a qualified paediatric…