Support
How The BDFA Can Support Us
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Family Well Being Service
The BDFA offers the opportunity for families to access their...
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Support Resources
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BDFA Family Folder
Parents frequently tell us meeting new clinicians and professionals and...
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Peer Befriending Service
The BDFA started offering a Peer Befriending service in July...
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Education & Schools
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Benefits & Grants
Caring for a seriously ill child with complex medical needs...
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Specialist Treatment Centres across the UK
There are 7 specialist NHS centres across the UK, providing...
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Transition to Adult Services
Transition - From Children to Adult Services and from Local...
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Palliative and end of life care, the role of the Childrens Hospice
Palliative care for children and young people is about promoting...
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Bereavement Support
Anticipatory Grief and Bereavement Receiving the diagnosis of Batten disease...
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Childhood Dementia And Batten Disease
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