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Equipment Grants

The following are just a few of many charitable organisations who have particular experience and/or expertise in assisting families to purchase or acquire this equipment.

Holiday & Short Breaks

The following are a list of options that may provide ways of overcoming these obstacles and offer some families the chance to experience a holiday or short break that they had not imagined possible.

Travel & Insurance

The BDFA cannot specifically recommend or endorse any organisation or insurance broker with regards to the provision of travel insurance; however we appreciate that it can be challenging to find appropriate cover when a family member has a pre-existing medical condition.

Wish Granting

Here are a few charities and organisations across the UK that specialise in granting wishes to children and their families who are faced with a diagnosis such as Batten Disease. Their focus is on providing opportunities for creating special memories.

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