Holiday & Short Breaks
The following are a list of options that may provide ways of overcoming these obstacles and offer some families the chance to experience a holiday or short break that they had not imagined possible.
Travel & Insurance
The BDFA cannot specifically recommend or endorse any organisation or insurance broker with regards to the provision of travel insurance; however we appreciate that it can be challenging to find appropriate cover when a family member has a pre-existing medical condition.
Wish Granting
Here are a few charities and organisations across the UK that specialise in granting wishes to children and their families who are faced with a diagnosis such as Batten Disease. Their focus is on providing opportunities for creating special memories.
