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*** UPDATE *** BDFA MEDICAL WEBINAR- CHANGE OF TIME

*** UPDATE *** BDFA MEDICAL WEBINAR- CHANGE OF TIME Wednesday 22nd April- NEW TIME 4PM Dear All,   Just to confirm our BDFA medical webinar tomorrow. Please note the change in time of 4pm.   Unfortunately Professor Gissen has had…

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BDFA MEDICAL WEBINAR,  Wednesday 22nd April- 11am

BDFA MEDICAL WEBINAR Wednesday 22nd April- 11am We are holding our first BDFA Medical Webinar next Wednesday at 11am. We welcome our guests for this event Professor Paul Gissen and clinical nurse specialists Laura Lee and Becky Bower. They will be discussing…

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One Of Our Parents, Amanda Harrison, Writes About Her Experience Of Lockdown During Coronavirus

One of our parents, Amanda Harrison, writes about her experience of lockdown during Coronavirus. Her feelings of isolation will resonate with many. Likewise, issues accessing shopping slots and the loss of key support such as the family's local hospice. Thank…

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Urgent Family Grant Scheme To Support Families Caring For A Family Member With Batten Disease With The Challenges Faced Due To Covid-19

** Some brighter news ** The board of the BDFA is pleased to announce an urgent family grant scheme to support families caring for a family member with Batten disease with the challenges faced due to Covid-19.   We have…

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Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease