General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Pride Of Batten Awards 2023 Nominations Are Open!

Nominate here Nominations for the Pride of Batten awards 203 are now open!

Read More
Pride Of Batten 2022, NOMINATIONS CLOSE SOON!

Has someone gone the extra mile to support you or a member of your family with Batten disease? This is your opportunity to highlight the very best practice across the UK and thank them in a really special way! We…

Read More
PRIDE OF BATTEN WINNERS

 It's the first year of these very special BDFA awards, celebrating best practice across the UK among people supporting and working with our children, young people and adults with Batten Disease.All our winners and those specially commended have been nominated…

Read More

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease