The BDFA supports families at every stage of the Batten journey, including our bereaved community.
This is the beautiful Tia, her mum Tammy and dad Lewis share their thoughts about her.
We are sending love to all families who have lost a loved one to this devastating disease.
Together we will make a difference. #battenday2023
With your support we can help support families living with the devastating diagnosis of Batten disease
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease