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Thank You

Here at the BDFA we want to say a MASSIVE THANK YOU to all of our families in the UK who attended the BDSRA annual family conference this past weekend, and thank you to all the other families all over the world!

It was another really special event and we are so grateful to get to be a part of it. The BDSRA did another amazing job this year! WELL DONE!

Thank you for all your hard work in the organisation, you should be really proud!

We hope our UK attendees liked their family boxes this year, and got some valuable information from the online sessions.

If you didn’t manage to attend or you missed any sessions, they are online to watch and catch up.

Contact us to find out how. THANK YOU ALL! 🧡🧡🧡

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease