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The LSD collaborative and partners have organised a Webinar about Covid-19 and all families are invited to attend.

Monday 23rd March, 11-12pm

Questions need to be submitted in advance.

We understand it’s an incredibly stressful time for you all. Please do get in touch with us for support. As soon as we have any further, clear information you will be the first to know


BDFA Chief Executive

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.