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RDD 2024 Support Pledge Strapline (1080×1080) ENGLISH

Let’s raise awareness and support for those living with rare diseases. Every person battling a rare condition is a warrior, showing incredible strength, resilience, and determination in the face of unique challenges.


Let’s shine a spotlight on the importance of research, early diagnosis, and access to treatment for rare diseases. Together, we can make a difference in the lives of millions around the world who are affected by these often overlooked conditions.


Join us in spreading awareness, showing compassion, and advocating for better resources and support for those with rare diseases. Together, we can create a world where everyone, regardless of their condition, has the opportunity to live their fullest life.

@rarediseaseday have shared this wonderful video this year, you can watch it here, and find out more about their work at https://www.rarediseaseday.org/

RareDiseaseDay #ShowYourRare #Awareness #Support #RareDiseaseAwareness #battendisease #battendiseaseawareness

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease