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The BDFA Are Pleased To Announce, Training Slots For Professionals Working With Childrenyoung People And Adults With CLN 3 Batten Disease.

We are pleased to be offering three (free) training slots with Sarah Kenrick, this is for professionals working with children/young people and adults with CLN3.

These training slots will be held over Zoom. If you feel this would be beneficial to your son or daughter’s educational setting or care team then please email Sian, sianfisher@bdfa-uk.org.uk

To make everyone aware, we will be running training for all CLN’s and for families too. No one will be left out… 😊

Please share with paid carers, teachers and any other professional you would like to attend.

Thank you BDFA Family Support Team 😊

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease