General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  

Moving to adult services: What to Expect is written for young people with complex health needs who are thinking about their future as an adult and wanting to consider their options and plan ahead in terms of education, employment and living arrangements, as well as what’s important to them in other areas of their life.  It aims to help young people make sure that the care and support they need is available so that they can get on with living. 

This guide has been divided into two main sections.  The first section talks about what you can expect at different stages of the transition process to adult services.  The second section focuses on different aspects of your life that you may want to plan for as an adult. 

Download the Guide here

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease