On Friday 28 April 2017 we will mark Undiagnosed Children’s Day.
Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Not having a diagnosis can be isolating, and often means that families find it difficult to access basic information and support.
There will be activities throughout April -including an Instagram challenge – details of how to get involved can be found here.
With your support we can help support families living with the devastating diagnosis of Batten disease
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease