Dear Families,
Theranexus and their partner Beyond Batten Disease Foundation, have announced final and positive safety and efficacy data in the Phase I/II trial testing Batten-1.
You can find a link to the press release here (https://www.theranexus.com/images/pdf/Theranexus_PR_Final_results_18_months_VF.pdf).
If you require any further information, please contact Jo (joannanightingale@bdfa-uk.org.uk)
With your support we can help support families living with the devastating diagnosis of Batten disease
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The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
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folder for a newly diagnosed family
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£50 a month
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Batten disease