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I Promise Myself To…

** Some brighter news **

The board of the BDFA is pleased to announce an urgent family grant scheme to support families caring for a family member with Batten disease with the challenges faced due to Covid-19.


We have a designated pot of £10,000 to give out to families in the form of two family grants. Grants of up to £500 are available for families who face financial hardship that has been exacerbated by the current situation. Grants of up to £200 are available for all families as wellbeing and resilience grants to help families get through the next weeks and months.


We know that you are all facing a really difficult time emotionally and practically and we hope this grant scheme will help in a small way to lift spirits and overcome practical challenges for our Batten community.

We are ensuring grants are super easy to apply for and there will be a very quick turnaround.

We will be sending out an email shortly to families we already support with the form attached, or if you would like us to email you the form directly, please email  with your details and the details of your family member with Batten Disease, variant type, age, and consultant details.

To get the completed for back to us, please edit in word, re-send back to us via email, or print and take a photo and email that to us. Support will be processing applications. 

If you would like to donate to help with this much needed cause for our families we would love to hear from you, please get in contact with us at

Stay safe and well,

The BDFA Team

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