There are a wide range of terms used about Batten disease, including medical and scientific terms, and acronyms and abbreviations. We have put together a number of documents to help with understanding these terms, acronyms and abbreviations.
Definitions and common terms – Cell biology
Definitions and common terms – Genetics
Definitions and common terms – HTA and Brain banks
With your support we can help support families living with the devastating diagnosis of Batten disease
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The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
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How your donation can help
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folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease