General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
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We are a proud member of the Disabled Children’s Partnership – a growing coalition of more than 60 organisations – campaigning for improved health and social care for disabled children, young people and their families in England.

We know that 43% of the British public don’t know anyone who is disabled and that 97% of parents with a disabled child do not believe the public understands the challenges they face every day.

Our campaign, the Secret Life Of Us – developed in close partnership with parents – looks to change this.

It reveals the parts of their lives that most people simply do not see – bringing to life the realities of the challenges disabled children, young people and their families face when living a life many of us take for granted.

By doing this, we hope to open the eyes of the public to the difficulties faced by families on a day-to-day basis, removing the barriers to people being able to relate to the lives of disabled children.

Through this, we can create greater understanding, affinity and empathy for affected families.

Because without awareness and understanding, we cannot achieve real change.

But, with increased awareness and public support we can make a real difference.

Pledge your support for our campaign here.

And like our Facebook page and follow us on Twitter!

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease