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Campaign Social Newlife Square 1
             

As part of our work with Disabled Children’s Partnership we are supporting Newlife the Charity for Disabled Children new report, ‘Fight For Our Future’, which reveals the bleak situation facing disabled children and their families.

The report paints a bleak picture, revealing that only 2 in 5 families feel their child has all the equipment they need.

Did you know? Over the last year, 60% of local authorities have seen assessment waiting lists grow, while nearly half have reduced their equipment budgets.

Please read and share the report: newlife.support/fight-for-future

They are urging Government to #ACTNow to make disabled children a priority. In this new report, they’re calling for a dedicated Minister for Disabled Children who will ACT: Accelerate equipment provision Cut assessment wait times Tackle staff shortages
Sign their petition here: https://newlifecharity.co.uk/sign-petition/

#ActNow #FightForOurFuture

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease