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The Human Tissue Authority (HTA) www.hta.gov.uk

The Human Tissue Authority is the government regulator for human tissue and organs in the UK.

They regulate the organisations that remove, store and use human tissue for research, medical treatment, post-mortem examination, education and training, and display in public. This includes organisations that store human tissue, including brains, for research. The HTA ensures that tissue is removed and stored in an appropriate and highly regulated way.

Central to the aims of the Authority is that the public will have confidence that strict regulation is in place to ensure that human tissue and organs are used safely and ethically, and with proper consent.

Brain Banks

These are scientific facilities that receive and store donations for research purposes. Brain Banks listed on the HTA website which are located throughout the UK. Individual Brain Banks may have different specialties but they do work collaboratively especially in the case of rare diseases such as NCL.

 

 

 

 

 

 

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease