General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
join our team BDFA

Family Support Worker

£26,500 per year pro rata
Permanent, Part-time, 21 hours a week
Job description

We are looking for a dedicated, empathic and organised person to join our growing family support team here at the BDFA. This is a home-based role (anywhere in the UK) and part time at 21 hours per week.

The BDFA is the only patient organisation in the UK for families affected by Batten disease, a rare and terminal neurodegenerative condition that affects children and young people.

This role as Family Support Worker will include daily contact with families and supporting their needs, logging information, providing support and training for schools and liaising with professionals such as nurses, social workers and teachers. The successful candidate will work under the guidance of our Head of Family Support and Advocacy.

This job requires a resilient and empathic individual who has passion for supporting those in our Batten community, with the desire to reach and support our growing Batten community.

Closing date: 12 November 2021

Community Fundraiser

£25,000 – £26,000 per year pro rata
Permanent, Part-time, 21 hours a week
Job description

We are seeking an experienced Community Fundraising Officer (based anywhere in the UK) to join the Fundraising Team at the BDFA.

The BDFA is the only patient organisation in the UK for families affected by Batten disease, a rare and terminal neurodegenerative condition that affects children and young people.

The role will incorporate leading on all aspects of community fundraising; developing and nurturing relationships with volunteer fundraising groups and families leading on fundraising.The successful candidate will work under the guidance of our Head of Fundraising to develop community fundraising maximising the funds raised by volunteer fundraisers and developing supporter engagement.

The job requires a motivated and driven individual who has a passion for all those within our Batten community and a strong desire to support the development and growth of the BDFA. The role is part time (21 hours per week) and is home based with some travel to the BDFA London office.

Closing date: 31 October 2021

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.