General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  

If you would like us to visit your child’s school please email and we can arrange a visit. Alternatively you could pass on our details to the school and they could contact us to arrange a visit.

For more education support you can speak to the following organisations: – SENSE are a national charity who work with Multi-sensory impaired children. They provide lots of support for families including support with educational meetings and they also can give legal guidance if you are having problems with the Education Health and Care Plans. They also do home visits and school visits to see how best they can support you as a family. –  IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs (SEN) and disabilities.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.