Thinking about the end of your child or young person’s life is an extremely difficult and emotional time, not only just for you but also for the rest of your family. It is very sadly something which families of children and young people with a diagnosis of an NCL will have to face. Some people like to plan well in advance to enable them to spend invaluable family time together. Planning ahead enables you to look at all the support available for you and you whole family when you need it most.
Getting in touch with your local hospice can be a good start when thinking about types of support available for, not just your child or young person but the whole family. Getting in touch early will enable them to build a relationship with you and your child or young person as their needs increase.
Together for Short Lives is a charity that supports children and young people living with life limiting illnesses in the UK. They can provide you with information on end of life care as well as giving you and your family lots of other information about what support you can receive and information about hospices. Visit their website: http://www.togetherforshortlives.org.uk/
Below is a list of all Children’s Hospices in the UK:
To view Adult Hospices please visit: http://www.hospiceuk.org/
South
The James Hopkins Trust
Kites Corner
North Upton Lane
Gloucester
GL4 3TR
01452 612216 – Website
Rennie Grove Hospice Care
Unit 3
Icknield Industrial Estate
Tring
HP23 4JX
01442 890222 – Website
Naomi House & Jacksplace
Stockbridge Road
Sutton Scotney
Winchester
Hampshire
SO21 3JE
01962 760060 – Website
Christopher Children’s Hospice
Old Portsmouth Road
Guildford
Surrey
GU3 1LP
0483 230960 – Website
Chestnut Tree House children’s hospice
Dover Lane
Arundel
West Sussex
BN18 9PX
Wales
Ty Hafan
Hayes Road
Sully
CF64 5XX
02920 532200 – Website
South West
CHSW Bristol
Charlton Farm
Charlton Drive
Wraxall
Bristol
BS48 1PE
01275 866600 – Website
The Jessie May Trust
35 Old School House
Kingswood Foundation Estate
Britannia Road
Kingswood
Bristol
BS15 8DB
0117 9616840 – Website
CHSW – Little Bridge House
Redlands Road
Fremington
Barnstaple
EX31 2PZ
01271 325270 – Website
Julias House
Floor 2b
Barclays House
1 Wimborne Road
Poole
BH15 2BB
01202 644220 – Website
CHSW Cornwall
Little Harbour
Porthpean Road
Porthpean
St Austell
Cornwall
PL26 6AZ
01726 871800 – Website
North
Jigsaw
Cumbria’s Children Hospice
Durdar Road
Carlisle
CA2 4SD
01228 810801 – Website
Butterwick House Children’s Hospice
Middlefield Road
Stockton on Tees
TS19 8XN
01642 607742 – Website
Zoes Place
Cross Beck House
High Street
Normanby
Middlesbrough
TS6 9DA
01642 457985 – Website
Martin House Children’s Hospice
Grove Road
Boston Spa
Wetherby
LS23 6TX
01937 845045 – Website
Forget Me Not Children’s Hospice
Russell House
Fell Greave Road
Huddersfield
HD2 1NH
01484 411410 – Website
Graces Place Children’s Hospice
Dumers Lane
Radcliffe
Manchester
M26 2TP
0161 762 5715 – Website
Zoes Place
Yew Tree Lane
West Derby
Liverpool
L12 9HH
0151 228 0353 – Website
Bluebell Wood Childrens Hospice
Cramfit Road
North Anston
Sheffield
S25 4AJ
01909 517360 – Website
South East
Little Havens Children’s Hospice
Stuart House
47 Second Avenue
Westcliff on Sea
Essex
SS0 8HX
01702 220350 – Website
Demelza Kent
Rook Lane
Bobbing
Sittingbourne
Kent
ME9 8DZ
01795 845200 – Website
Demelza Community
Langtye Farm
Langtye Lane
Ripe
Lewes
East Sussex
BN8 6BA
01323 446 461 – Website
Shooting Star House Children’s Hospice
The Avenue
Hampton
Middlesex
TW12 3RA
London and Greater London
Alexander Devine Children’s Hospice
15 Grove Park Business Estate
Waltham Road
White Waltham
Maidenhead
Berks
SL6 3LW
0845 0558276 – Website
Noahs Ark Childrens Hospice
3 Beauchamp Court
10 Victors Way
Barnet
EN5 5TZ
0208 4498877 – Website
Haven House Children’s Hospice
The White House
High Road
Woodford Green
Essex
IG8 9LB
0208 5059944 – Website
Richard House Children’s Hospice
Richard House Drive
Beckton
London
E16 3RG
0207 5110222 – Website
Demelza South East London
5 Wensley Close
Eltham
London
SE9 5AB
0208 8599800 – Website
CHYPS
Ellenor Lions Centre
St Ronans View
East Hill Drive
Dartford
Kent
DA1 1AE
01322 221315 – Website
Scotland
Rachel House & Robin House
CHAS Scotland
3 High Street
Kinrern Irelarizon House
18 O’Neill Road
Newtownabbey
BT36 6WB
02890 7777635 – Website
Rebecca House
Strang Douglas
Isle of Man
IM4 4RP
01624 647400 – Website
Midlands
The Donna Louise Children’s Hospice
1 Grace Road
Trentham
Stoke-on-Trent
ST4 8FN
01782 654440 – Website
Acorns Childrens Hospice
Walstead Road
Walsall
WS5 4LZ
01922 422500 – Website
Acorns Childrens Hospice
102 Oak Tree Lane
Selly Oak
Birmingham
B29 6HZ
0121 248 4850 – Website
Acorns for the Three Counties
350 Bath Road
Worcester
WR5 3EZ
01905 767676 – Website
Zoes Place
Easter Way
Ash Green
Coventry
CV7 9JG
02476 361675 – Website
Helen & Douglas House
14A Magdalen Road
Oxford
Oxfordshire
OX4 1RW
East Anglia
EACH
Church Lane
Milton
Cambridge
CB24 6AB
01223 815100 – Website
EACH
Quidenham
Norwich
Norfolk
NR16 2PH
01953 888603 – Website
EACH
The Treehouse
St. Augustine’s Gardens
Ipswich
IP3 8NS
01473 271334 – Website
Keech Hospice Care
Great Bramingham Lane
Streatley
Luton
LU3 3NT
01582 492339 – Website