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Who We Are

The Batten Disease Family Association (BDFA) is the only UK Charity dedicated to supporting families, raising awareness and facilitating research into the group of diseases known as the NCLs or Batten Disease.
We receive no funding from statutory sources and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers. Contact us to discuss what you can do to Bring Light to Batten Disease.
The Batten Disease Family Association (BDFA) is committed to ensuring that no family faces the journey with Batten Disease alone.
We aim to facilitate research into Batten Disease to further knowledge about the disease, potential therapies and ultimately a cure.

How to Join in

Support Forum

Login and visit BDFA Forum for more discussions, comments and other important matters regarding BDFA. Registration is easy and hassle free.

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Find out more about BDFA

You can help bring a difference to children and young adults affected by Batten Disease across the UK by supporting the BDFA’s work. From as little as £2 a month you can help to bring light to Batten’s.

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