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The following papers relate to the AGM 2017 – Click to view or download

Minutes of October 2016 AGM

Minutes of November 2017 AGM

2016/17 Report and Accounts

All Members are entitled to vote at the AGM. If you are unable to attend the AGM yourself, someone else may attend and vote. Alternatively, you may appoint a proxy to vote for you, using the attached proxy form. Your completed proxy form must be at our offices or sent by email to no later than 13.30 on Monday 13th November 2017.

If you would like to attend, please RSVP by Monday 14 November to Lucy Roose (phone 01252 416323 or email

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

You can also TEXT DONATE 

Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.