General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  

These days provide valuable training, information and resources for education professionals working with children and young people with an NCL diagnosis. It will be a time for education professionals to get together and share good practice as well as learning more about the disease itself and the effects this can have on a child’s learning.

If you know of any education professionals from your child’s school who would like to attend please contact Harriet with the details of the school and she will email them or you can get the school to email Harriet for more information. – support@bdfa-uk.org.uk

Download the Booking Form Here

Download the Training Day Programme

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease