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We are pleased to announce the launch of tickets for the BDFA family conference, which are now available to book

The BDFA are excited to be holding our Family conference again in October 2023. We have made some changes to the plan for this year, which we hope, will make the weekend a really great family event.

Conference details

Location

Crowne Plaza Stratford Upon Avon, an IHG Hotel

Bridge Foot, Stratford-upon-Avon, England, CV37 6YR

Date

Friday 13th October 2023– Arrival welcome drinks 6pm

Saturday 14th October– Full day of events planned for all, followed by dinner and entertainment

Sunday 15th October– Family fun day, ending at 4pm

 

Important Information for event

 Family bookings PLEASE READ THE DESCRIPTION FOR IMPORTANT BOOKING DETAILS.

Tickets

• Each person attending the event needs to book a ticket.

• Adult carer tickets are free, up to two carers per affected child in the family.

• All children are free of charge to attend.

• Other adults/ family members are welcome to the event, but there will be a charge for these tickets.

• Tickets include buffet breakfast, lunch and refreshments during the weekend.

• The BDFA will be holding a dinner event on the Saturday evening, please select tickets for this in the booking process so we know who is attending dinner.

 

Accommodation

All tickets include accommodation on the Friday AND Saturday night if required, paid for by the BDFA. Please select this at the booking process so we know which nights and rooms you require. You can select these if you scroll down when selecting your tickets before you checkout.

If you do not select your accommodation you will not be allocated hotel rooms.

After you have booked, you will need to fill in an online form providing us with further details to help us with the planning of the event.

The conference is still very much in the planning, so more details will come out in due course. If you have any barriers to you joining us in terms of travel or support please can you email Amanda at amandamortensen@bdfa-uk.org.uk

Any queries or issues booking tickets or any other conference matters, please contact Lisa at admin@bdfa-uk.org.uk

Take a look at the photos and video below to see what we got up to on a previous conferences!

We are sending our love and thoughts to the families of the children who featured in this video who are no longer with us.

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Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease