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Family Support
Family Networking
The BDFA's Family Networking Scheme supports families to make contact with others experiencing the journey of Batten Disease. Learn more about the Family Networking Scheme and how you can become involved.
Family Stories
Read more about some of the families that we support and share in their stories of living life with Batten Disease.
Educational Support
The BDFA is here to support families through every step of the Batten’s journey. One of the many considerations for all families is their child’s education and how they can receive the best possible educational support.
Social Support
More links to sites to provide support and information to families living with a child or young person with a disability such as ACT and Contact a Family
Practical Support
This section contains information on practical support for families, children and young people such as aids, equipment and travel insurance.
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