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Our Community and Covid-19

As the government have now removed the majority of restrictions much of the advice previously offered is no longer valid.

The government website now has extensive and detailed guidance on the virus but in particular we would draw attention to the current information relating to COVID-19 vaccination for at-risk children and young people aged 12 to 15 years (simple text) – GOV.UK ( which is maintained by the government and provides the latest information.

Should you need further assistance then please contact and we will respond.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.