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BDFA Family Folder

FREE FOR FAMILIES

Families tell us frequently that the professionals working with their children and young people often do not have access to quality information and resources about all aspects of Batten disease.  We hear that health, social care and education professionals turn to the internet for information which can be poor, inaccurate and out of date.  To try to solve this issue, the BDFA, with thanks to the kind sponsorship of the Truemark Trust and the Pickering Family, have been able to produce a family folder containing information about all aspects of care for children and young people, and the support and services that are available across the UK.

£25

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To make a donation to the BDFA please click the button below which will take you Paypal.

You can also TEXT DONATE 

Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.