Michael O’Connor – Chairperson
Mike O’Connor lives in Bentley, Hampshire. He has been married to Alex for 14 years and has 3 children -…
Roger Cole – Treasurer
Roger Cole worked in the British Telecom development department on remote computer management and control of equipment and retired in…
Catherine Sermon – Trustee
Catherine is a Campaign Director at a charity called Business in the Community, where she has worked for over 15…
Pauline Docherty – Co-Chair
Pauline is one of the founder members of the BDFA and is married to Jim. Both her children were diagnosed…
Neil Dunford – Trustee
Neil Dunford recently joined as a Trustee member for the BDFA this summer. His daughter, Yanna, has the CLN2 variant of…
James Jeynes – Trustee
James is father of Lewis Jeynes (born in 2004), who was diagnosed with Batten Disease (CLN14) in 2014. For many…
Amanda Mortensen – Trustee
Amanda has 12 years’ experience in the voluntary sector, 20 years’ experience as a journalist and 10-years’ experience as a…