General: 07876 682589    |   Fundraising: 07876 682589   |   Support: 0800 046 9832  
Bob Thompson- Trustee

Bob Thompson- Trustee

  Bob Thompson is parent to Frank (12) who has CLN2, Kirk (20), Mae (17) and Blue the dog. Bob…

Simon Sewart- Trustee

Simon Sewart- Trustee

  I am a father of two boys Max (9) and Felix (6). Max was diagnosed with atypical CLN2 in…

Catherine Sermon – Trustee

Catherine Sermon – Trustee

Catherine is a Campaign Director at a charity called Business in the Community, where she has worked for over 15…

Pauline Docherty – Chair

Pauline Docherty – Chair

Pauline is one of the founder members of the BDFA and is married to Jim.  Both her children were diagnosed…

Neil Dunford – Trustee

Neil Dunford – Trustee

In 2014, Yanna, Neil’s daughter was diagnosed with CLN2 Batten Disease and within a short period of time Neil and…

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