Zlatko Sisic- Trustee- Chair of Trustees & BDFA Medical and Scientific Lead
Dr Zlatko Sisic has joined the Board of BDFA as the Medical and Scientific Lead in February 2020, and…
Bob Thompson- Trustee
Bob Thompson is parent to Frank (12) who has CLN2, Kirk (20), Mae (17) and Blue the dog. Bob…
Simon Sewart- Trustee
I am a father of two boys Max (9) and Felix (6). Max was diagnosed with atypical CLN2 in…
