General: 01252 416323   |   Fundraising: 07876 682589   |   Support: 0800 046 9832  
Roger Cole – Treasurer

Roger Cole – Treasurer

Roger Cole worked in the British Telecom development department on remote computer management and control of equipment and retired in…

Catherine Sermon – Trustee

Catherine Sermon – Trustee

Catherine is a Campaign Director at a charity called Business in the Community, where she has worked for over 15…

Neil Dunford – Trustee

Neil Dunford – Trustee

Neil Dunford recently joined as a Trustee member for the BDFA this summer. His daughter, Yanna, has the CLN2 variant of…

James Jeynes – Trustee

James Jeynes – Trustee

James is father of Lewis Jeynes, who was diagnosed with Batten disease in 2014.  For many years Lewis remained undiagnosed…

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All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.