Gareth Holmes- Trustee- Fundraising Lead
Gareth has led the Fundraising and Communications Team at the Helen Bamber Foundation since 2014. Gareth has more than…
Zlatko Sisic- Trustee- Chair of Trustees & BDFA Medical and Scientific Lead
Dr Zlatko Sisic has joined the Board of BDFA as the Medical and Scientific Lead in February 2020, and…
Bob Thompson- Trustee
Bob Thompson is parent to Frank (12) who has CLN2, Kirk (20), Mae (17) and Blue the dog. Bob…
Simon Sewart- Trustee
I am a father of two boys Max (9) and Felix (6). Max was diagnosed with atypical CLN2 in…
Richard Whitbread – Treasurer
Richard spent over 25 years as a Senior Financial Manager in the Consumer Goods industry retiring in 2014. …
Catherine Sermon – Trustee
Catherine is a Campaign Director at a charity called Business in the Community, where she has worked for over 15…
Pauline Docherty – Secretary
Pauline is one of the founder members of the BDFA and is married to Jim. Both her children were diagnosed…
Neil Dunford – Trustee
In 2014, Yanna, Neil’s daughter was diagnosed with CLN2 Batten Disease and within a short period of time Neil and…