General: 07876 682589    |   Fundraising: 07876 682589   |   Support: 0800 046 9832  

 

I am a father of two boys Max (9) and Felix (6). Max was diagnosed with atypical CLN2 in 2019 at the age of 7. Max is currently receiving Brineura© at GOSH. I worked as a mechanical design engineer before moving into IT and medical data systems within the NHS. More recently I have worked on commercial web applications, including patient booking systems.  I am passionate about protecting the rights of children in health and education. In spare time, I love football, running, cycling and generally getting muddy outside.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

 

All donations help us to provide the best support we can to families affected by Batten Disease.

 

Thank you for your support.