General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  

 

I am a father of two boys Max (9) and Felix (6). Max was diagnosed with atypical CLN2 in 2019 at the age of 7. Max is currently receiving Brineura© at GOSH. I worked as a mechanical design engineer before moving into IT and medical data systems within the NHS. More recently I have worked on commercial web applications, including patient booking systems.  I am passionate about protecting the rights of children in health and education. In spare time, I love football, running, cycling and generally getting muddy outside.

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease