I am a father of two boys Max (9) and Felix (6). Max was diagnosed with atypical CLN2 in 2019 at the age of 7. Max is currently receiving Brineura© at GOSH. I worked as a mechanical design engineer before moving into IT and medical data systems within the NHS. More recently I have worked on commercial web applications, including patient booking systems. I am passionate about protecting the rights of children in health and education. In spare time, I love football, running, cycling and generally getting muddy outside.
