General: 07876 682589    |   Fundraising: 07876 682589   |   Support: 0800 046 9832  
Liz Brownnutt- Head Of Fundraising

Liz Brownnutt- Head of Fundraising

  As Head of Fundraising for the BDFA, Liz is responsible for growth of income to achieve long-term sustainability. Liz, from Shipley, West Yorkshire has 22 years’ experience as a…

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Gareth Holmes- Trustee- Fundraising Lead

Gareth Holmes- Trustee- Fundraising Lead

  Gareth has led the Fundraising and Communications Team at the Helen Bamber Foundation since 2014. Gareth has more than ten years' charity sector experience, specialising in corporate and organisational…

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Zlatko Sisic- Trustee- BDFA Medical And Scientific Lead

Zlatko Sisic- Trustee- BDFA Medical and Scientific Lead

  Dr Zlatko Sisic has joined the Board of BDFA as the Medical and Scientific Lead in February 2020. He graduated from the Medical School in Belgrade in 1991 and…

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Bob Thompson- Trustee

Bob Thompson- Trustee

  Bob Thompson is parent to Frank (12) who has CLN2, Kirk (20), Mae (17) and Blue the dog. Bob is also a screenwriter, producer, business consultant and university lecturer…

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Simon Sewart- Trustee

Simon Sewart- Trustee

  I am a father of two boys Max (9) and Felix (6). Max was diagnosed with atypical CLN2 in 2019 at the age of 7. Max is currently receiving…

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Richard Whitbread – Treasurer

Richard Whitbread – Treasurer

    Richard spent over 25 years as a Senior Financial Manager in the Consumer Goods industry retiring in 2014.  His main duties were monthly and annual financial reporting and…

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Rebecca Bower- Clinical Nurse Specialist

Rebecca Bower- Clinical Nurse Specialist

  I just wanted to take the time to quickly introduce myself to you all. As you are aware, Laura Lee will be starting maternity leave in May and I…

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Wendy Thompson- Family Support Officer (North)

Wendy Thompson- Family Support Officer (North)

I originally qualified as a Nursery Nurse, working with families and young children with disabilities within local Health Authorities, working alongside multi-disciplinary teams (i.e. consultants, physios, specialist nurses etc.) Since…

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Borris – Official Mascot

Borris – Official Mascot

Hi!  I am Boris The Bear, I am the official mascot for the BDFA. I live in the BDFA office and make sure everything is running smoothly. I love going…

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Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

 

All donations help us to provide the best support we can to families affected by Batten Disease.

 

Thank you for your support.