Sarah Chandler – Fundraising Assistant
Sarah lives in Manchester and she will be working full-time at the BDFA to assist with various aspects of the…
Dr Joanna Nightingale- Head of Scientific Affairs
Jo joined the BDFA in June 2022 with a wealth of experience in scientific research and has worked in the…
Mimi Petty- Peer Befriending Coordinator
Mimi is a bereaved parent and her son Bertie passed away in 2019 from CLN1 Batten disease. Mimi is already…
Sarah Kenrick- Family Support Partner
Sarah is a Registered Nurse for people with Learning disabilities and has worked in the health and social care sector…
Liz Brownnutt- Head of Fundraising, Interim Chief Executive Officer
As Head of Fundraising for the BDFA, Liz is responsible for growth of income to achieve long-term sustainability. Liz,…
Boris – Official Mascot
Hi! I am Boris The Bear, I am the official mascot for the BDFA. I live in the BDFA office…
Lisa Forsyth- Team Admin Officer
I joined the BDFA in October 2017 helping in the office 2 hours a week, I now work 5…