General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  

Hi!  I am Boris The Bear, I am the official mascot for the BDFA. I live in the BDFA office and make sure everything is running smoothly.

I love going on adventrues for the BDFA and reporting back on what I have been up to on our Facebook page. Check out my adventures there! I have climbed Ben Nevis, helped Lucy and Harriet Climb Mt Snowdon, and even to 10 Downing Street!  If you would like to take me on adventure, please let the office know and I can join you if you promise to take lots of photos for us!

Hobbies- Eating biscuits and being with my Batten friends.

Love Boris xx

 

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease