Professor Jon Cooper has just been informed by Kings College that his laboratory will be moving between the 15-19th June. As you are aware, this is the same week that we had planned to have the PSDL/BDFA Lab Open Day for…
Claudia Alejandra Soto has just completed a Tough Mudder Challenge, ahead of doing the London 10K in July. If you would like to support her, visit her Just Giving Page!
Our Newsletter and Bulletin are now available for download below. Please have a read! Spring Newsletter 2015 Spring Bulletin 2015
Thank you to everyone who made our office launch such a success and to each of you who support the BDFA every day in our work.
The BDFA work closely with the Roald Dahl Marvellous Children's Charity. They have launched an exciting programme entitled ‘Precious Moments. The programme is looking at health communications and is being delivered in partnership with Contact A Family. They are calling…
Nominations have opened for the 2015 Well Child Awards. These annual awards, supported by long term partner GSK, celebrates the inspirational qualities of the UK’s seriously ill children and young people along with the dedicated health professionals who go that…
On 29th January Farnborough Freemasons from Mercury Lodge presented a cheque for £850 to Andrea West, Chief Executive Officer of the Batten Disease Family Association, to support them in all their valuable work providing help and assistance to children with…
BDFA are supporting this years Rare Disease Day on February 28th. www.rarediseaseday.org 2015 marks eight consecutive, successful years of Rare Disease Day. Continuing the momentum, Rare Disease Day 2015 puts the focus on the daily lives of patients, families and caregivers…
You are all invited to our New Office Launch on February 27th 2015 - 12-2pm A chance to meet the team and find out more about what we do. Refreshments provided! The Old Library, 4 Boundary Road, Farnborough, Hants, GU14 6SF Link…
NEW YEAR NEW START! Feeling a little jaded after the excess of Christmas? Looking for some inspiration to make a difference to Batten Disease? Wanting to set yourself a New Year challenge? Why not sign up for the British 10K London Race and…