General: 07354 486586   |   Fundraising: 07745 210212   |   Support: 0800 046 9832  

Monthly Archives: February 2018

NICE Say NO To The Use Of Cerliponase Alfa For Children With CLN2 (Late Infantile Batten Disease)

NICE say NO to the use of Cerliponase Alfa for children with CLN2 (Late Infantile Batten disease) BDFA Summary of NICE Decision NICE ECD Report SIGN THE PETITION HERE This decision means that children diagnosed with this devastating disease in…

Read More

Make a donation:

To make a donation please click the button to the right.

For one week only during the Big Give Christmas Challenge, (Tuesday 28th November- Tuesday 5th December) our donate button will redirect you to our campaign page to make your donation which will be DOUBLED!

 Thank you for doubling your donation!

 

 

Donate Here to double it!