General: 01252 416323   |   Fundraising: 07876 682589   |   Support: 0800 046 9832  
UCL School Of Pharmacy Study

UCL School of Pharmacy is carrying out a study to investigate the views of parents and carers about administering medicines to children via the rectal route. The survey will ask some demographic and background information before presenting three scenarios, where…

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Sophia Awarded Her PhD Today

Congratulations to Sophia who has been awarded the degree of PhD today. This a fantastic achievement and one we can all take great pride in as all your efforts funded her studies.  This is an important career step for Sophia and rewards…

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Run 10K For The BDFA

Is your New Year's resolution to get fit and have fun? And to raise money for the BDFA whilst doing it? Then sign up for the Vitality British London 10K, staged through the heart of central London passing many of…

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Jenny Shackleton’s Extreme Fundraising

Starting from 2015, Jennifer Shackleton has been on Obstacle Course Racings to raise money and awareness for BDFA and Batten Disease. Her latest run was in Coventry, last weekend, on 9th of January. Thank you, Jennifer for all your hard…

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Points Of Light Award From The Prime Minister – Duncan & Rod

We are delighted to announce that Duncan Brownnutt and Rod Wark have been awarded the UK Prime Minister's award of the Points of Light. The award recognises those outstanding volunteers who make a change and Duncan and Rod have certainly…

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Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.