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BioMarin CLN2 (Late Infantile Trial) – Evelina London Children’s Hospital

The Evelina London Children’s Hospital, Guy’s and St Thomas’ NHS Foundation Trust, London has begun recruiting subjects with late infantile CLN2 disease, a form of Batten disease, for a clinical trial.  The trial will examine whether BMN190, an experimental drug,…

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Autumn Newsletter & Bulletin

Our new newsletter and Batten Bulletin is  available for you to download.  Read about our work and our future plans.  Please pass on to friends, families or colleagues and help us raise awareness of Batten Disease. Autumn Newsletter 2013 Batten…

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Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease