General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Disability Benefits Session With Disability Benefits Expert Lizzie MBE

Wednesday 15th December, 10.30-12.30- via zoom As part of our ongoing partnership with Rett UK and Demelza This is a session for families who may have a new diagnosis and are applying for DLA for the first time, or there…

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PRIDE OF BATTEN WINNERS

 It's the first year of these very special BDFA awards, celebrating best practice across the UK among people supporting and working with our children, young people and adults with Batten Disease.All our winners and those specially commended have been nominated…

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BDFA Christmas Charity Single 2021, Pre Order Now!

We are so excited!! The Christmas Charity single in aid of the BDFA is released on Friday 3rd December and you can order a copy on limited edition CD now! See David's link below...We can't wait! Stay The Same (Featuring…

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Can You Help The BDFA To Win A £1,000 Ecclesiastical Movement For Good Award?

Starting on the 6th December Ecclesiastical will be giving away ten £1,000 grants each day for twelve days, to charities that have the most nominations! This award would mean a lot to us and be a great help, as we…

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BDFA Birthday Event Saturday 20th November 2021- Join Us To Celebrate!

Happy Birthday BDFA!2021 marks the 20th anniversary of the BDFA becoming a registered charity! So to celebrate this mile stone for the BDFA, we are having a party!Sadly we would love it to be in person, but we will have…

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NCL 2021 Edition Conference Debrief And Summary And Ask An Expert- Sign Up Now

UK zoom session with Professors Jon Cooper (Washington University) and Sara Mole (UCL) Come and find out all about the presentations at the NCL 2021 conference (held recently in St Louis in the US) and about the latest research into…

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BIG NEWS – BDFA Batten Befrienders Launch

We have big news, long post alert, but so worth it! It’s national befriending week this week and what better time to announce that we have secured funding for a new peer befriending project, sitting at the heart of the…

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BDFA CHRISTMAS CARDS ON SALE NOW!!

       Our amazing Christmas cards are on sale now in the BDFA shop on the website.  You can buy the cards in a pack of 10, including 5 designs by our winner, 16 year old Annabelle, and 5…

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Do You Have A Young Person In Full Time Education Coming Up To The Age Of 16 Or Beyond? You May Be Able To Claim Universal Credit Worth A Significant Extra Income

Do you have a young person in full time education coming up to the age of 16 or beyond? You may be able to claim Universal Credit worth a significant extra income for your young person. Jayne Knights (benefits consultant)…

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Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease