General: 01252 416323   |   Fundraising: 07876 682589   |   Support: 0800 046 9832  
Snowdon By Night – 9-10th June 2018

Do you want a different challenge?  Would you like to join us and see beautiful Snowdonia by moonlight and raise money for the BDFA at the same time? 9th-10th June 2018 Snowdonia National Park in North Wales is synonymous with…

Read More
Starlight Ball 2017 – Thank You

On a beautiful June evening we were lucky enough to host our very first Starlight Ball.  It happened to be held on awareness day.  We were thrilled to see so many people support the BDFA and also have a fantastic time…

Read More
Harriet Is Running The London Marathon

Many of you know Harriet Lunnemann who is the BDFA support and advocacy worker. Not only does Harriet travel the country supporting families on behalf of the BDFA, she also volunteers with families living with disability in Uganda. Now she…

Read More
Starlight Ball 2017

We are delighted to announce we will be holding a BDFA Starlight Ball on awareness day – Friday 9th June Join us for Dinner, Drinks and Tunes! All proceeds go to The BDFA Single tickets £75 or a table of 10…

Read More
Rare Disease Day 2017 – Get Involved

Rare Disease Day takes place on the last day of February each year. This year its the 28th February 2017 The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases…

Read More
Family Conference 2016

After our amazing Family Conference last weekend. We have posted the photos taken over the weekend on out facebook page for you to see and share! We will have our video up very soon!

Read More
When Ollie Met Harry

On Monday evening, 5 year old Ollie Carroll and his family attended the WellChild Awards Ceremony in London to receive his award for Most Inspirational Child (aged 4-6) from HRH Prince Harry. Brave Ollie, who has CLN2 (Late Infantile Batten disease),…

Read More
Virtual Warrior 5K For The BDFA

During the month of December Virtual Warrior are raising money for The Batten Disease Family Association (BDFA) to commemorate the life of a very special little girl named Amber, who sadly passed away in February 2016. All you have to do…

Read More
Ollie Wins A WellChild Award

We are so thrilled to see Ollie Carroll will receive a Well Child award, congratulations to you all and Ollie's Army Battling Against Battens for your amazing efforts in raising awareness and fundraising. For many parents, life’s simplest joys are found…

Read More
Francis Mills Completes 297 Mile Ride From London To Paris

Francis Mills trained vigorously for the challenge, overcoming the loss of his specialist bike after it was snatched from his workplace in June. Left without his £550 white Trek bike, the fundraiser saw supporters far and wide rush to his…

Read More

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

You can also TEXT DONATE 

Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.