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Dr Joanna Nightingale, Head Of Scientific Affairs Attended A Roundtable Meeting Hosted By MAP Patient Access Limited

On the evening on Wednesday 26th April, Dr Joanna Nightingale, Head of Scientific Affairs attended a roundtable meeting hosted by MAP Patient Access Limited on “Harnessing the potential of advanced therapy medicinal products (ATMPs) – the case for change” at…

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Join Our Friendly Dads Chat Session On Tuesday 2nd May At 8pm On Zoom

Join our friendly Dads chat session on Tuesday 2nd May at 8pm on zoom. The Dads Chat group is a chance to meet with other dads of children with Batten disease. It’s led by one of our trained parent Peer…

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BDFA Staff News-Head Of Family Support, Sian Fisher Leaving In June

Dear All, I am saddened to announce that Sian Fisher, our wonderful Head of Family Support and Advocacy, is leaving the BDFA in early June. Sian is moving to Winston’s Wish, the UK’s childhood bereavement charity, as a bereavement support worker. Sian explains…

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