Our Autumn Newsletter is available to download and read, if you want a hard copy, please contact admin@bdfa-uk.org.uk Click here to read.
It is with sadness that the BDFA Board of Trustees announces the departure of Andrea West as CEO of the Batten Disease Family Association, effective from the 1st March 2018. Since September 2010, Andrea has played a critical role in…
Portland, a London-based public affairs and communications agency who specialise in health communications, have been developing a disease awareness campaign for childhood dementia. The aim of the campaign is to raise awareness of what childhood dementia is and the challenges…
