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BATCure Research Consortium News

The BDFA is delighted to announce that the BATCure Research Consortium headed up by Dr Sara Mole at University College London has been awarded an EU Horizon2020 Innovation Grant of 6 million Euros to investigate potential therapies for CLN3, CLN6…

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Board Of Trustees Vacancies

Do you, a friend, relative or colleague have the time, skills and commitment to support our work and help us achieve our vision of a world without Batten disease? We have vacancies on our Board of Trustees and would love…

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Cycle To The Circle – Read About The Journey!

The Cycle to the Circle team have made it! You can read about the amazing journey and why they have done it here - Words form the team on completion - Worth it for 'the cause'. A big thank you to BDFA,…

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Disability Living Allowance (DLA)

In the recent Mathieson case, the Supreme Court found that rules suspending payment of Disability Living Allowance (DLA) after 84 days in hospital breached the human rights of a severely disabled child. The Court didn't say that that the hospital…

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