General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
New Book Available ‘Max And Abby’ By Dr Ineka Whiteman

The BDFA are pleased to introduce a wonderful new book by Dr Ineka Whiteman in association with the Batten Disease Support & Research Association Australia. The book called 'Max and Abby' is told through the eyes of big sister Abby,…

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Easter Hunt Boxes On Sale Now!

Special charity Easter hunt buckets available to buy now! It’s the 10th Anniversary of Beefy's Charity Foundation and the BDFA is one of the four charities they support alongside (add the handles for the other charities which are Blood Cancer UK,…

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Egg-citing BDFA News For Easter

Launching later this week the BDFA will have special Easter hunt buckets available to buy from our online shop, filled to the brim with delicious chocolates, including some specially wrapped in BDFA colours and our logo. Our wonderful supporters, Beefy's…

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BDFA Christmas Cards 2022 On Sale Now

Our Christmas cards for 2022 are on sale in the BDFA shop on the website now! Pack of 12 cards includes 4 from each of our design winners and included envelopes. Visit the BDFA shop here Take me to the…

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BDFA 2022 Christmas Card Winners Are….

BDFA Christmas Card designs winners are.......WELL DONE to our 3 winners Oliwia, Louis and Arthur, who are all siblings to young people with Batten disease. We will be in touch with our wonderful winners soon, and the cards will be…

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BDFA Kids T-shirt’s In The Shop Now!

Check out the new BDFA kid’s t-shirts. Available in our BDFA colour options of blue and orange. T-shirts have the option to be personalised (extra charge for personalisation) Grab one in time for Batten disease Awareness day on June 9th…

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Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease